Sarcoma Awareness Month: Is Proton Therapy an Option for You?

Proton Therapy for Both Soft Tissue and Bone Sarcomas

Although often considered a rare cancer, over 13,000 Americans will be diagnosed with soft tissue sarcoma this year – one of two primary forms of the disease along with bone sarcoma. Of these, nearly 40% are expected to be fatal.

In recognition of Sarcoma Awareness Month in July, we at the New York Proton Center want to highlight how proton therapy can be beneficial to sarcoma patients and some of the industry-leading work we do here at NYPC, treating high volumes of both adult and pediatric sarcomas.

Proton therapy can be an effective treatment for both soft tissue and bone sarcomas. It can be a primary treatment or used in addition to surgery and/or chemotherapy. However, large tumors, tumors deep in the body or near joints, and retroperitoneal tumors (located in the area outside or behind the tissue that lines the abdominal wall) benefit the most from protons. For retroperitoneal tumors, proton therapy can better protect the bowels, kidneys, liver and other nearby critical structures compared to traditional photon radiation. For other sarcomas such as those located in the extremities, proton therapy has the potential to better preserve quality of life and functional outcomes following treatment.

Biological Benefit of Proton Therapy for Sarcomas

In addition to its precision and reduced side effects, proton therapy may have a biological benefit for sarcoma treatment because proton particles are heavier than photon particles and, therefore, can be more effective at killing tumors. Sarcomas, and especially bone sarcomas, are often resistant to traditional radiation. Proton therapy, therefore, can lead to the most effective tumor killing for many of these radioresistant cases.

Patients experiencing a recurrence of soft tissue or bone sarcoma following photon radiation may be able to participate in a reirradiation study now underway at NYPC. This study is evaluating the extent to which proton therapy can be a better way to treat recurrent tumors in patients who have previously received radiation therapy to the same area.

Prior to making treatment decisions, we highly encourage patients and caregivers to consult with their physician and decide if proton therapy is a viable treatment option. We are collaborating with research centers around the world to showcase the benefits of proton therapy and make it more readily accessible to patients who could benefit from this advanced technology.

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Proton Therapy: An Effective Treatment for Prostate Cancer

The New York Proton Center is proud to be a sponsor of the 2024 ZERO Prostate Cancer Run/Walk in New York City – a crucial funding source for prostate cancer awareness, research, and patient support. Over the past fifteen years, ZERO has raised more than $32 million, and more than 170,000 runners and walkers have participated in events to provide support to more than 200,000 men across the country who have experienced prostate cancer. We have been proud to participate in this event for four years, and to raise awareness of proton therapy for prostate cancer.

An important treatment option for prostate cancer is 5-fraction SBRT (stereotactic body radiation therapy) proton therapy. Approximately one in eight men will be diagnosed with prostate cancer during their lifetime, and as technology and medicine have advanced, 5-fraction SBRT proton therapy has emerged as an effective treatment option offering ultra-precise radiation therapy that safely delivers a higher dose of radiation per session over just five days, with sessions every other day. 

Compared to more invasive, longer treatments, 5-fraction SBRT proton therapy offers exceptional precision by using pencil beam scanning technology and sending protons directly to the tumor site, sparing surrounding healthy tissues and protecting vital organs. The efficacy of 5-fraction SBRT is comparable to the standard prolonged course of proton therapy, giving patients optimal care without a lengthy treatment schedule. Because of the precision of the radiation as well as the shortened treatment period, patients can complete therapy more efficiently and experience milder or even no side effects. 

While many cancer centers offer photon-based SBRT like CyberKnife, and many proton centers routinely treat prostate cancer, only a handful of centers in the world, including NYPC, offer both the 5-fraction course with the ultra-precision of proton therapy. The use of 5-fraction proton SBRT is a significant milestone in the field of prostate cancer therapy and helps ensure people have expanded treatment options once they receive a diagnosis. 

With prostate cancer being the most common non-skin malignancy diagnosed in men, it’s critical that men have the information they need to stay healthy and get the treatment that works best for them. Learn more by visiting us at the Run/Walk on September 7 at our information table and inside the Messages of Hope & Remembrance Tent. We also encourage you to read about the benefits of proton therapy for prostate cancer.

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Supporting Patients’ Emotional Well-being During Cancer Treatment

At the New York Proton Center, we know that a cancer diagnosis can be life-altering news. For patients, there may be specific anxieties around what various treatments will feel like, and a general fear of the unknown. Patients may also experience financial stressors during treatment, fear of recurrence of the cancer, and pressing practical concerns like finding local lodging or transportation to treatment. All these stressors can impact mental health.

During May, Mental Health Awareness Month, NYPC Social Worker Chrissy Rubin, LCSW and Nurse Practitioner Alisa Ryncarz, AGACNP-BC offered some tips to help patients and their families navigate the treatment process.

NYPC has always emphasized a holistic approach to care, with patients’ emotional well-being an important consideration throughout treatment. That’s why our multidisciplinary patient care team includes social workers who are advocates and can help with the emotional and logistical pressures that can come with cancer treatment. They support NYPC patients emotionally but also offer tangible help with things like connecting them with financial resources, introducing them to peer support groups, facilitating transportation and lodging, and preparing them to re-enter the working world after treatment. Other team members, including nurses, are also keenly attuned to patients’ well-being throughout treatment, checking in regularly to uncover any special needs to address.

Chrissy and Alisa offer three strategies that patients and survivors can utilize on their own to help alleviate stress and improve their mental health during and after treatment.

  • Stay in the moment. With a treatment plan that may span several weeks, it’s reasonable to get ahead of oneself when thinking about what is next, and to experience anxiety related to the future. While it may be hard, try focusing on what’s happening right in front of you, taking deep breaths and being present in the current moment. Take every day one step at a time.
  • Ask for help! It is important to ask your network of family and friends for help and be explicit about what you need. If you’re tired from a treatment session and just want to sit with a friend and watch a movie, or just want to talk to someone about what is going on in their life, it’s okay to be specific about these preferences. Patients who are impacted by loss of income and financial hardship during treatment can sign up for NYPC’s Forward Together, a free online platform where they can create a Support Registry to request assistance with a wide range of non-clinical expenses and needs.
  • Practice self-care. Self-care comes in many different forms, and it’s important to find something that relaxes you and makes you feel at ease. This could mean getting outside, reading a book, or listening to music – anything that brings you a sense of calm. During treatment, it’s essential to treat yourself with grace and understand that you may need more self-care time than usual.

NYPC is here to support patients and families not only with proton therapy treatment, but also with services, emotional care and counsel to help improve patient mental health and well-being. During Mental Health Awareness Month and every month, we will continue to strive to give patients the treatment and tools they need to thrive.

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